Autism Rates (Revisited)

(Originally posted as a Facebook post; reposting here nearly a month after the fact so that the information is easily linkable)

I want to direct everyone’s attention to 3 studies that were done with regards to prevalence rates and autism. These 3 studies are older but quite significant.

  1. South Korea prevalence study, May 2011:

    Significance: They looked at ALL students whether they had been provided with special education services prior or not. Large sample size of 55,000 students ages 7 through 12. They found the rate was 1 in 38.

  2. College students on the Autism Spectrum prevalence study, May 2011:

    Significance: The study looked at a large sample of 667 at a single university.

  3. Read more.

Did you know….

Did you know…

….tomorrow starts Autism “Awareness” month?

….Wednesday is World Autism Awareness Day?

….that the messages that came out of last week’s prevalence rates are damaging to Autistic people?

….that the messages that will come out in the month to come are even worse?

….that this is usually the month that I ward off Facebook, social media sites, and general autism information all together?

….that I am so happy that I’m no longer working for any autism/autistic organization so don’t have to be exposed to all of the crap at work all day, all night?

The truth is, this month that we are upon is dreaded by most Autistic people.… Read more.

1 in 68 with 1:5 girl-boy

Another CDC post to add to your mix… forgive me…

CDC release

CDC Surveillance Summary

I want to state two things before I get into what I’m actually posting about.

  1. This is not an epidemic. (Statement can also be read as “Vaccines don’t cause autism.”)
  2. Yes, the data is from 2010, but that doesn’t make it outdated. Please remember that 2010 had to end. Individual sites had to compile their data. Those sites then had to send to the CDC. The CDC had to compile that data. Then CDC had to go through records. Then they had to come up with a way to present the information.
  3. Read more.

The False Dichotomy – “High” and “Mid-to-Low” Functioning

I get to be reminded of this quite often. This false dichotomy between those with “high functioning autism” and those with “mid to low functioning autism.” Why? Because Daniel, to those who split things down those lines, is considered “mid to low functioning,” and to those who split things down those lines consider Stephen to be “high functioning.” I’ve been accused of having nothing but “high functioning” kids because of my expectations and the way I frame their skill sets.

But when you meet them, you can see the types of supports my children need. I don’t even go through a lot of those supports here because I respect them enough to not be so cruel and share their most intimate struggles with the world.… Read more.

An Open Letter to Educators


I know for the most part, most of you went into this profession to educate the next generation of students. You wanted to help them succeed and lead future generations. You work for less than you deserve and are expected to spend more of your personal time and energy and sometimes money to reach the goal of giving students the tools they need to lead productive lives as adults.

But I’m here to tell you, many of you are failing some of your students. You are failing to live up to your end of the bargain with parents and your students.… Read more.